Wednesday, November 4, 2015

2015 TCS Marathon - Part One


The days and weeks leading up to the 2015 NYC Marathon were some of the most difficult not only physically, but mentally that I have felt in a long time.  At times I felt as if my life was spinning out of control – well, not really my life per se but my mind.  My emotional roller coaster was on constant repeat and I just wanted to get off the ride.

I guess you can say the ride started last spring when I finally hit rock bottom because of my sleep issues.  After 18+ years suffering from chronic fatigue I was done.  I was done fighting.   I was ready to give up, throw in the towel, wave the white flag, lay down for the count.  I wanted help, I needed help.  Both physically and emotionally and the only thing that was going to provide me with the help I needed was medication.

I really wasn’t very eager to add yet another pill to my pharmaceutical candy jar, but everything I had tried that didn’t involve making the drug companies richer wasn’t working.  I had already spent hundreds of thousands of dollars on every type of therapy you can imagine.  Psychotherapy, hypnotherapy, cognitive therapy, exercise therapy, life management skills therapy, cranial sacral therapy, physical therapy, and massage therapy. 

I tried acupuncture, chiropractic, Egoscue, TheAlexander Technique, yoga, Pilates, meditating and praying.  Eating a 100% plant-based diet helped me to lose weight and get healthy but it didn’t help with the fatigue.  B12 didn’t help.  Vitamin D didn’t help.  Magnesium didn’t help.  Sleeping all day didn’t help.  The only thing that did help was Hyperbaric OxygenTherapy but that was now beyond my financial means since insurance refused to cover it.  

My marriage was suffering, my kids were suffering, my overall health and well-being were suffering.  So I finally turned to my neurologist for help which started well over a yearlong battle with my insurance company to approve medication intervention that would allow me stay awake during the day.

I was forced to take multiple naps per day all the while trying to maintain the active life that helped me manage the Traumatic Brain Injury (TBI) side effects that now plagued me.  Running, strength training, etc.  That magic pill that helped me deal with my depression, mood swings and post traumatic stress disorder.  I tried to force myself to get out of bed each day and do some sort of physical activity, but it was hard and the chronic fatigue was winning.  Still, I registered to do something I have always dreamed of doing, even before my incident, the New York City Marathon. 

Thanks to an organization called Achilles International, I was given an Athlete With Disabilities (AWD) slot to “run” in the TCS NYC Marathon on November 1, 2015.  I was elated.  I was finally going to participate in the biggest event of my life.  Most people consider the Boston Marathon the cream of the crop, but to me, it doesn’t get any better than the NYC Marathon.  NYC is my Boston.  I had finally made it to the top, but the celebration was short lived when I couldn’t even find the energy to lace-up my sneakers let alone hit the pavement with them.

The chronic fatigue that had plagued me for 18 years was now providing my depression with the rocket fuel it needed to take full control of my life.  My excitement about the marathon quickly turned to stress and anxiety which led to daily panic attacks.  The panic attacks made me hide from everyone and everything.  I didn’t want to run or exercise.  I didn’t want to see anyone, including my family members.  I didn’t want to talk with anyone.  I didn’t want to go anywhere.  I was miserable.

In September, after many doctor’s visits, tests, crying, screaming, nervous breakdowns, and self pity parties, I finally got the approval from my insurance company for the medication I needed.  My doctor prescribed me the drug Nuvigil and my chronic fatigue was now a thing of the past, at least temporarily.  It was time to get serious about this marathon – the only problem was that I only had a little over a month to train for it.

Relying on pure determination, I set out to train as best as I could within the short amount of time I had.  I had been working out with my trainer/coach, Jacob “Jake” Nelson, and physically, I felt as if I had the strength I needed to complete it  – it was the endurance capability I was worried about.  Jake is highly educated and extremely knowledgeable when it comes to exercise science, kinesiology, biology and anything and everything to do with anatomy.  He is the only one I  completely trust when it comes to training because he fully understands all of my injuries.  Jake said he had no doubt that I would finish the race and that was all I needed to hear to feel confident.  All I wanted to do was finish without injuring myself any further and before it was time to catch my plane back to the Bay Area the following day.

I trained with Jake a few times a week and did long runs on the other days.  My long runs were proving to be some of the best runs of my life.  I managed to get my heart rate down to 140 bpm while running which provided me with a comfortable pace in which to go long distances. 

Two weeks before the race I was given a last minute opportunity to run the Nike Women’s Half Marathon in San Francisco and I took it. The course was extremely difficult, more hills than in the previous years I had participated in this half marathon and it turned out to be a beautiful sunny and warm day, not the best racing weather in my book. 

The temperature climbed pretty high as soon as the sun rose and the absence of any clouds in the sky made the sun’s heat penetrating.  I could not get my heart rate below 155 bpm and the hills were taking a toll on my legs.  The first five miles were a real struggle and I was getting worried.  I finally gave up on my heart rate and focused on just being able to climb to the top of each hill without the need of an oxygen tank.  It was a tough race, and I was completely spent when I crossed that finish line at 13.1 miles.  In two weeks’ time I had to do double that amount – 26.2 miles – I was in big trouble.

This was a huge blow to my confidence level and the anxiety and panic attacks returned.  On top of this, I started experiencing the most excruciating back pain.  I had no idea where this was coming from as back pain wasn’t something I had experienced in the past.  It was debilitating pain and it prevented me from training at 100%.

Jake and I had to switch the focus of my training.  We had been performing intervals that kept my heart rate high in order to prepare my body to go a long distance at its target of 140 bpm.  Now we had to worry about the back pain I was experiencing.  We eased up on the intensity of the workouts and incorporated more stretching exercises to try to get my back muscles to relax.  Still, I was getting no relief.

The Nuvigil was now in full swing and I had gone two full weeks without having to take any naps during the day.  I was alert, focused and full of energy, but my back was killing me.  In order not to develop a tolerance to this medication, it is advised to do what they call cycling in order to keep your brain guessing as to when the medication will be in your system.  So for instance, take it for 2 weeks, and then take 1 week off.  Then take it for 1 week and take 2 weeks off.  Switching it up like that is what I was told would help keep the medication working at its best.  So I came to the 1 week where I was to stop taking it and low and behold, after 2 days off the medication, my back pain disappeared.
This prompted me to do a little more research on the side effects that other Nuvigil users reported.  

No where on the drug’s official website does it list back pain as a possible side effect so I had to do some digging.   Sure enough, I found a group of people who posted complaints in an online forum of Nuvigil users about severe joint and back pain when taking the drug.  I couldn’t believe this was happening.  I had finally found a treatment to help with my daytime sleepiness and provide me with the necessary energy I needed to be active only to develop back pain so severe that even just walking was a struggle.  I had just opened Pandora’s Box and all my depression, anxiety and panic attacks in my world were now unleashed.


I started to do something I hadn’t done since I crossed the finish line at my first half marathon back in 2010 – I started to doubt my ability to successfully complete the marathon.  

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